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Charting Parkinson’s symptoms: from symptomometer to app

After reluctantly joining the Parkinson’s community it struck me how difficult it is to remember the progression and impact of symptoms, and how useful it would be to do so. My journey has taken me through identifying my symptoms, designing a way to chart them, to discussions with the Chief Solutions Officer of an app.  … Continue reading Charting Parkinson’s symptoms: from symptomometer to app

Feelin’ shaky

When an annoying collection of particular, individual Parkinson’s symptoms get together and gang up on me, I invariably think of Simon & Garfunkel’s beautiful ‘59th Street Bridge Song’.  “Feelin’ shaky” has become a common part of my language and a regular, but unpredictable, part of my life. And trust me, there’s nothing ‘groovy’ about the … Continue reading Feelin’ shaky

Looking at lockdown through the Parkinson’s lens

Kerry rang me, distressed, early on the morning of Tuesday March 17: “You’re in a ‘high risk category’!”. Eight months after being diagnosed, during which nothing much had happened, this was one of the moments that made my Parkinson’s real. But what did ‘high risk’ mean, and what would it mean for me and others … Continue reading Looking at lockdown through the Parkinson’s lens